Monday, February 1, 2010

Not what I need right now

I just got a call from my doctor's office telling me that the second set of bloodwork (for the sequential screening) came back positive for Dow.n Syndr.ome. This does not necessarily mean that the baby has Do.wn Syn.drome, but rather that it can't be ruled out.

I guess the next step is to get a level 2 ultrasound and an amnio. My doctor got on the phone and said "Don't worry, your NT scan was fine and the first bloodwork was fine. You'll go get the screening, you'll get the amnio, and then you won't have to worry for the rest of the pregnancy."

I love my doctor, and he was very reassuring. If only it were that easy not to worry. I'm trying not to be cynical, but there's a big piece of me that's feeling like this isn't fair.


Wendy said...

oh hun, I'm so sorry this is another added piece of anxiety - will be thinking about you and praying for you and baby

Anonymous said...

Praying for you and the little one and hoping things turn out just fine!


Stacie said...

You're absolutely right. This is not what you need right now. Please stay positive, and we'll all do the same.

I hope you get some answers soon.


Dawn said...

I'm sorry for the bad news. I'm sure the amnio will show all is well. Praying for you and your little one.

just me, dawn said...

sweetie, I can totally imagine how worried you must be. I am going to just remind you, you are right, it just means that it can't be ruled out (but even when it is negative, it is still possible) the US and amnio will give you definitive answers....and your prvious good results lead me to believe this is one of the many false positives that scare the crap out of us. Sending you a hug and prayers. whe will you be able to get the US and amnio?

wifey said...

Oh Lucky,

You are right. It isn't fair, that after all you have been through you have to have this added layer of worry.

Fingers crossed for you.

CeCe said...

I am sorry that you have been dealt added anxiety. I will be keeping you and your little one in my prayers!

I just went through the same thing a week and a half ago. The anxiety leading up to the amnio was the hardest part. The procedure itself was fine and results were normal.

Please feel free to email me if you have any questions that I can help with.

Em said...

I'm so sorry! I hope everything goes okay and that you get answers.

For what it's worth, I have known more people who have gotten a false positive than people who had an accurate positive. I hope that made sense.

My Dr. is really encouraging me to have those tests done, especially since we lost Lilly to Trisomy 16. I refused the testing. What is it going to change? We are going to love this baby, and deal with whatever challenges come our way-- no matter what.

Stay positive! :)

cheryllookingforward said...

Ugh, why is there so much stress for the girls who want this so bad?It's so unfair!

When will you have the amnio? I hope it is soon!! I'll be thinking about you!

Christa said...

I know how scary that result can be, but please stay strong. I've learned so much in the last 3 years since losing Zachary, and one very important lesson was to never trust the Down Syndrome test. According to my doctors and my cousin who is a Gynecologist, that test is notoriously inaccurate. There are so many false positives, I'm not sure why they still trust it. That being said, having an amnio will give you an absolute answer, and you will know for sure. I'm hoping and praying that it was a false positive and that your amnio will give you the peace of mind you deserve for the rest of your pregnancy. ((BIG HUG))

Shawn said...

So sorry to hear that! Hopefully, it is a false positive. I'll be keeping my fingers crossed for you and your little one!

Karen said...


You can add me to the ranks of those women who got a false positive on this test, too. Hopefully your baby is just fine and this was just a fluke. With the good results you've had on the earlier tests, I have trouble imagining that there's a real problem. But I know it's different when it's your baby on the line. Hopefully, the amnio will be soon and you'll be able to get the answers you need.

Anonymous said...

Oh gosh. (((Hugs)))